(The same for the Omnipod site.) We’d also had transmitter issues which can be crushing when you’ve just done an insertion. It’s a great CGM but my daughter was developing infections and scarring at the insertion site. This could help a lot of kids/teens manage their diabetes.ĭiagnosed with Type 1 diabetes at 4 years of age, my daughter is 14 now and had been using the Omnipod insulin pump for the past 2 years in combination with the Dexcom G5 Continuous Glucose Monitor (CGM). Other parents are already reporting that their insurance is covering off-label use.
Our endocrinologist said they prescribe equipment off-label all the time so she expects it will be covered even sooner. If the FDA follows Europe’s lead, I expect it will be fully approved for kids and teens within 1–2 years. Canadians got the FreeStyle Libre in August 2017- also for adults only - with a 14-day wear period - same as Europe. The FreeStye Libre has been available in Europe since September 2014 for adults 18+ and was approved for children 4–17 in February 2016. ($80 one-time cost for the reader and $40 for each sensor - similar to costs in the UK and Canada.)
I’ve had to pay out-of-pocket since December. Later, we found out that because it wasn’t approved by the FDA for use by kids/teens under 18 our health insurance wouldn’t cover it.īummer. Initially, our insurer didn’t seem to know what the FreeStyle Libre was and we were told it was fully covered. There was some confusion at the pharmacy. I’d been trying to find a way to get my hands on it for a year and had even considered asking a friend in Spain if she could get it for us. According to our local Walgreens, it was the first prescription they’d ever filled for the new system (New York City).
My daughter received her first FreeStyle Libre Flash Glucose Monitoring system in early December 2017.
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